Emerging Adult Health

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Siobhan MacDermott


Research - Frequently Asked Questions

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Why participate?

With your help we would like to find out more about young people with chronic illness and what it is like for people your age to live with chronic illness. It is hoped that the results will provide a better understanding of the issues and better services to young people with chronic illness in the future.

What is involved?

You will be asked to contribute to an online forum, which is like a chat room, about what it is like to have a chronic illness since childhood. The forum will be private and only the participants of the study and myself as the researcher will have access to it.

It is important to that the information from this study will be used in reports and publications. However, the information from the forum will be anonymous meaning your name will not be used and all the information will be stored securely and will be password protected by myself.

I hope that it will be a positive experience for you and a chance to share your own views and experiences of growing up and living with chronic illness.

How will my confidentiality be protected?

While there will probably be publications as a result of this study, your name will not be used. Only group characteristics will be published. If you participate in this study, we would like to be able to quote you directly without using your name.

Are there any risks to me?

We don't anticipate any risks to you from participation in this study.

What if I want to withdraw from the study at any time?

Your participation is completely voluntary. If you decide not to participate or to withdraw from the study it will have no effect on any services or treatment you are currently receiving.

What next?

If you feel you would like to take part in the study you can click on the email link on this page that will direct you to the researcher who will clarify any questions you may have regarding the study and what is involved.

If you don't have any questions you can go directly to the consent page on this site. Once you have agreed to take part in this study you will receive an email from me inviting you to join the forum. There are some ground rules and guidance notes in the forum. If at any time you have any queries please contact Siobhan. (Please note that the forum will not be available until 12th Sept 2013)

Who should I contact if I have any questions?

You may ask any questions about the research at any time. If you have questions about the research please contact the Principal Investigator Siobhan MacDermott at 01 7007156 or email her siobhan.macdermott@dcu.ie

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